REFERENCES

1. Middleton A, Milne R, Thorogood A, et al. Attitudes of publics who are unwilling to donate DNA data for research. Eur J Med Genet 2019;62:316-23.

2. Dheensa S, Lucassen A, Fenwick A. Fostering trust in healthcare: participants’ experiences, views, and concerns about the 100,000 genomes project. Eur J Med Genet 2019;62:335-41.

3. Middleton A, Milne R, Almarri MA, et al. Global public perceptions of genomic data sharing: what shapes the willingness to donate DNA and health data? Am J Hum Genet 2020;107:743-52.

4. Middleton A, Parry V, Borra J, Orviss K. A public backlash towards genomics is a risk all of us working in genomics must share. Lancet Reg Health Eur 2022;15:100347.

5. Chu ATW, Fung JLF, Tong AHY, et al. Potentials and challenges of launching the pilot phase of Hong Kong Genome Project. J Transl Genet Genom 2022;6:290-303.

6. Hong Kong Genome Institute. Strategic Plan 2022-25. 2022. Available from: https://hkgp.org/wp-content/uploads/2022/07/HKGI-Strategic-Plan-2022-25.pdf [Last accessed on 22 March 2023].

7. Clarke V, Braun V, Hayfield N. Thematic analysis. In: Smith J, editor. Qualitative psychology: a practical guide to research methods. London: Sage Publications Ltd; 2015. pp. 222-48. Available from: https://www.torrossa.com/en/resources/an/5018480#page=233 [Last accessed on 20 Mar 2023].

8. Nowell LS, Norris JM, White DE, Moules NJ. Thematic analysis: striving to meet the trustworthiness criteria. Int J Qual Meth 2017;16:160940691773384.

9. Lewis C, Sanderson S, Hill M, et al. Parents’ motivations, concerns and understanding of genome sequencing: a qualitative interview study. Eur J Hum Genet 2020;28:874-84.

10. Mackley MP, Blair E, Parker M, Taylor JC, Watkins H, Ormondroyd E. Views of rare disease participants in a UK whole-genome sequencing study towards secondary findings: a qualitative study. Eur J Hum Genet 2018;26:652-9.

11. Berrios C, James CA, Raraigh K, et al. Enrolling genomics research participants through a clinical setting: the impact of existing clinical relationships on informed consent and expectations for return of research results. J Genet Couns 2018;27:263-73.

12. Anderson JA, Meyn MS, Shuman C, et al. Parents perspectives on whole genome sequencing for their children: qualified enthusiasm? J Med Ethics 2017;43:535-9.

13. Chung CCY, Chu ATW, Chung BHY. Rare disease emerging as a global public health priority. Front Public Health 2022;10:1028545.

14. Sanderson SC, Lewis C, Hill M, et al. Decision-making, attitudes, and understanding among patients and relatives invited to undergo genome sequencing in the 100,000 Genomes Project: a multisite survey study. Genet Med 2022;24:61-74.

15. Stiles D, Appelbaum PS. Cases in precision medicine: concerns about privacy and discrimination after genomic sequencing. Ann Intern Med 2019;170:717-21.

16. Amendola LM, Robinson JO, Hart R, et al. Why patients decline genomic sequencing studies: experiences from the CSER consortium. J Genet Couns 2018;27:1220-7.

17. Hoffman SJ, Mansoor Y, Natt N, et al. Celebrities’ impact on health-related knowledge, attitudes, behaviors, and status outcomes: protocol for a systematic review, meta-analysis, and meta-regression analysis. Syst Rev 2017;6:13.

18. Wang W. Twenty-First century celebrity: fame in digital culture. 2018, 256p. Available from: https://www.emerald.com/insight/publication/doi/10.1108/9781787437081 [Last accessed on 20 Mar 2023].

19. Hong Kong Genome Institute. Available from: https://hkgp.org/en/ [Last accessed on 20 Mar 2023].

20. Cheung NYC, Fung JLF, Ng YNC, et al. Perception of personalized medicine, pharmacogenomics, and genetic testing among undergraduates in Hong Kong. Hum Genomics 2021;15:54.

21. Zimani AN, Peterlin B, Kovanda A. Increasing genomic literacy through national genomic projects. Front Genet 2021;12:693253.

22. Department of Health & Social Care. Genome UK: 2021 to 2022 implementation plan 2021. [Available from: https://www.gov.uk/government/publications/genome-uk-2021-to-2022-implementation-plan/genome-uk-2021-to-2022-implementation-plan [Last accessed on 20 Mar 2023].

23. Qatar Genome Program. Available from: https://www.qatargenome.org.qa/about-qgp/qatar-genome/journey [Last accessed on 20 Mar 2023].

Journal of Translational Genetics and Genomics
ISSN 2578-5281 (Online)
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